My 10 words from 2008

Growth. Courage. Release. Awe. Trust. Awareness. Joy. Healing. Clarity. Mercy

Rheumatrex is what my rheumatologist has decided to do. I am choosing
injections as my hope is to get into remission and I don't want to add
more side effects than I need day a week, I'm thinking Friday
nights so I can sleep a portion of it off and take it easy if need be
on the weekends. "Low dose chemotherapy" is what kind of reminds that
this is real...but not. The things we see are not, unseen...are! As I
know that until I'm better, I continue to follow doctor's orders,
believing that even thru new medicines, all testing, and trials (no
pun intended) Help is on the Way!

Thanks to very special people who lift me up along the way....

Moon Faces

What does a room full of RA'ers on Prednisone look like? Moonies! I
officially look in the mirror and repeat, "it's not what's in the
outside that counts," until I can believe it. Ok I know the "power of
positive" is way overused & even marketed in a skewd manner... But I
assure you that positive things said are very powerful when it comes
to not buying into the negativity that comes with being sick! That's
my version and I'm sticking to it! And yes...the moon face is still
there...but there's hope ill get off of this horrific/helpful drug
soon and maybe get to lose weight soon! I've got an appt this next
week! Ever heard if rhupus? This is our next topic a la diagnosis di


A picture says a thousand words....

Where is my new Rheumie?

My proposed Rheumatologist went out on maternity leave... Congrats!!!
I look forward to meeting her next year :) Seriously though it will be
that long and I'm super stoked about getting on some up-to-the-minute
drugs, instead of general "rheumatherapy".... Can someone please
process my referral asap???? My stand in guy sounds like a winner but
will be out on vacation all of October....augh

Walking All Day...

We went to the State Fair, had a ton of fun but WALKED all day long!
My saving grace was the chair feet massagers that up until that day
had never looked so good!!! I feel like I ran a marathon but I'm also
down to 10mg of prednisone so it's all relative... Yea for fun with my
daughter & husband and yea for no flare!!!

Biologics, please!

My elbow will not bend straight! I'm headed to sleep when I realize
that because I've taken pain meds (Mobic), I couldn't feel that it's
been hurting...until it started to wear off. Things like that along
with all the side effects of Prednisone send me off on this worry
trail that I haven't started DMARDS or best (from my research)
Biologics!!! Since I start a new Rheumatologist this month, I look
forward to dropping the double-chin look and maybe a few bouts of I
can't feel my elbow along the way...

Some more news about biologics & new research below...

Also, been excited about new research from Mayo Clinic (Phoenix) Shout
out to Mom for help with getting me diagnosed & taking care of me in
the harder times

So...I emailed this article to my family and we got to thinking that
the oddity of randomness could indeed be a glimpse of the mysteries
spoken of in the Word...God has that right but increased learning has
its' discoveries...just some thinking prob exacerbated by coffee

Rheumatoid Arthritis

Today was a good day...but not for THE RA. Hated walking, called all
the doctors, wanted to do so many things that just hurt too much. I
told someone last night "I'm sorry can you open this for me" and
explained in a sentence or two what I'm up against (not claiming it 4
life) and they said "oh you hide it well"....
Now they said that because it came out again..."we aren't really
telling people." See I'm struggling with what to do.... My iPhone
doesn't even recognize the acronym RA! I was 26 when they said it's a
rare, early onset of RA...I feel like it makes me "old" and being aged or wise is ok by me...but "old" is
different.... I do know that all things work together for the
good...but today I wondered how rough some days in the future might be
and how it might affect "this or that."
To get perspective I sat down to read "A Long Way Gone" and finished it out with The Bible; between, Job &
Ishmael Beah...RA didn't define my day!

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